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2015 Color Run - Tariya
Story
Haemochromatosis is the most common genetic disorder in Australia. About 1 in 200 people of northern European origin have the genetic risk for haemochromatosis. People with haemochromatosis absorb too much iron from their diet. The excess iron is stored in the body. Over time this leads to iron overload. Haemochromatosis tends to be under-diagnosed, partly because its symptoms are similar to those caused by a range of other illnesses. If undetected and untreated, the excess iron can cause organ or tissue damage and can potentially result in premature death. The good news is that if haemochromatosis is detected before damage occurs, it can be easily treated with regular blood venesections and is no barrier to a happy and successful life.
Haemochromatosis Australia is a non-profit registered charity run entirely by volunteers. As the primary advocacy group for Australians affected by haemochromatosis they provide support for people affected by haemochromatosis, their families and loved ones and promote awareness, early diagnosis and research.
Supporting Haemochromatosis Australia, supports me .
Activity
Haemochromatosis Australia
Haemochromatosis Australia is the support, advocacy and health promotion group for people affected by haemochromatosis and their families. We are run entirely by volunteers with no paid staff.
Our vision is that no Australian will suffer harm from haemochromatosis.
We aim to raise awareness of haemochromatosis in the community so that those people at risk are diagnosed and treated early. We participate in the annual International Haemochromatosis Week 1 - 7 June, and conduct awareness activities throughout the year. We provide support and information through our website and social media channels, INFO LINE 1300 019028, print and electronic information products, public information sessions and other activities.
Haemochromatosis (inherited iron overload disorder) is the most common genetic disorder in Australia, affecting one in 200 people. If untreated, it can lead to serious, even fatal health complications. Yet is is easy to treat, and if diagnosed before harm occurs, people with haemochromatosis can look forward to a normal, healthy life.
We need your support to help us fund our informationa and support services and our camoaigns to raise awareness of the risks of inherited iron overload in the community.